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Neurofibroma (Brain)- Symptoms, Treatment & Support

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Posted by adeel | Dec 20, 2020

What is the Neurofibroma of the Brain?

Neurofibroma of the brain is a rare benign (non-cancerous) tumour of the cells of the myelin sheath of peripheral nerves. These are Schwann cells, fibroblasts, and perineural cells of the myelin sheath; this sheath surrounds supports and protects the peripheral nerves of the brain and spinal cord. These tumours invade the nerve and destroy its sheath and fibres. The most commonly affected nerve is the vestibulocochlear nerve, which is responsible for hearing and balancing the body.

What are the Peripheral Nerves of the Brain and Spinal Cord?

Peripheral nerves are 43 pairs of nerves that connect the brain and spinal cord to the entire human body. These nerves perform various functions of sensation, movement, and muscle coordination.

Disease Etiology (Causes)

There is no well-known cause; certain genetic mutations are responsible for the development of neurofibroma. A genetic disorder called von Recklinghausen causes multiple nerve damage due to neurofibroma.

Signs and Symptoms

Signs and symptoms depend on the location and size of the affected nerve. These are usually non-cancerous and very slow-growing tumors, which in most cases remain asymptomatic.

Diagnosis

The following diagnostic tests and procedures can be used to make a diagnosis. These are

  • Imaging tests such as X-Ray, CT-scan (computerized tomography), PET-scan (Positron emission tomography) help detect the site, size, and location of the tumor.
  • Tumor biopsy and histopathological examination

Treatment

In early stage, surgical removal of the brain tumor is the main treatment option. Radiation therapy and chemotherapy are the main treatment options for advanced cases of the neurofibroma brain tumors. In some asymptomatic cases, the patient is only under regular follow-up with brain and spinal cord scans and may not need treatment.


 

What Support can we Give for Neurofibroma?

Neurofibroma is a rare cancer, meaning it is not as well known as other forms of cancer. Without a Ribbon is an Australian organisation that provides support for individuals who suffer from rare cancers. So, we provide a designated platform for Warriors to obtain information specific to their Rare Cancer. We also provide annual opportunities for our Warriors to meet and learn from each other. If you suffer from rare cancer such as Neurofibroma we can help and support you through your journey thanks to the generous donations we receive. Click the link below to sign up and become a Warrior today!

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You can help us with your donation:

Without a Ribbon is a charity that works hard to aid those who suffer from rare cancers. You can help our cause in a variety of ways:

Donations — Without a Ribbon is grateful when we receive every donation. Giving to Without a Ribbon helps us to provide ongoing support, organise the annual gathering and subsidise the costs of our Warriors attending these conferences.
Sponsorship — If you wish to sponsor our charity, please contact us using this form.
Volunteering — We are always looking for volunteers to help with different aspects of running our charity. So, if you are looking for volunteer work, please feel free to contact us.

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