NTRK-Rearranged Spindle Cell Neoplasm is a rare type of soft tissue tumour. It develops because of a change (fusion) in a gene called NTRK. This genetic change causes cells to grow and divide abnormally, leading to the formation of a tumour.
These tumours can occur in different parts of the body, especially in the arms, legs, head, neck, and trunk. They can affect both children and adults but are more common in children and young people.
Many sufferers of NTRK-Rearranged Spindle Cell Neoplasm struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as NTRK-Rearranged Spindle Cell Neoplasm. We have recently created an NTRK-Rearranged Spindle Cell Neoplasm resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of NTRK-Rearranged Spindle Cell Neoplasm, click here to learn how you can help!
Click the link below to read our resource page on NTRK-Rearranged Spindle Cell Neoplasm: