CNS Neuroblastoma, NOS (Not Otherwise Specified) is a rare cancer that develops in the brain or spinal cord. It is most often diagnosed in children and adolescents. The tumour begins in immature nerve cells and tends to grow quickly, making early diagnosis and treatment important.
The term “NOS” is used when the tumour shows the characteristics of a CNS Neuroblastoma but cannot be placed into a more specific category based on available laboratory or genetic testing results.
Many sufferers of CNS Neuroblastoma struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as CNS Neuroblastoma. We have recently created an CNS Neuroblastoma resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of CNS Neuroblastoma, click here to learn how you can help!
Click the link below to read our resource page on CNS Neuroblastoma: