Our New Resource Page for NUT Carcinoma
NUT Carcinoma is a very rare and aggressive form of cancer that can start almost anywhere in the body, though it most often appears in the head, neck, or chest area. The name “NUT” comes from a specific gene (NUTM1) that changes or joins with...
Our New Resource Page for Sclerosing Epithelioid Fibrosarcoma (SEF)
Sclerosing Epithelioid Fibrosarcoma (SEF) is a rare and slow-growing type of cancer that develops in the body’s soft tissues — the muscles, tendons, or connective tissues that hold our body together. The word “sclerosing” means hardening, and...
Our New Resource Page for Carotid Body Tumour
A Carotid Body Tumour is a rare type of growth that develops in the carotid body, a small cluster of cells located on each side of the neck where the carotid artery divides into two branches. The carotid body normally helps the body regulate...
Our New Resource Page for Primary Paratesticular Sarcoma
Primary paratesticular sarcoma is a very rare type of cancer that develops in the paratesticular region, which includes the tissues surrounding the testicle such as the spermatic cord, epididymis, and supportive soft tissues. Unlike testicular...
Our New Resource Page for Krukenberg Tumour
A Krukenberg tumour is a rare form of ovarian cancer that develops when cancer cells from another part of the body spread to the ovaries. Unlike primary ovarian cancer, this tumour is metastatic in nature, meaning it originates elsewhere, most...
Our New Resource Page for Translocation Renal Cell Carcinoma (Xp11.2)
Translocation renal cell carcinoma, often referred to as Xp11.2 renal cell carcinoma, is a rare type of kidney cancer. It was first recognised in the early 2000s as a distinct disease after genetic studies revealed that it results from a specific...
Our New Resource Page for CNS High-Grade Neuroepithelial Tumour with BCOR Alteration
CNS High-Grade Neuroepithelial Tumour with BCOR alteration is a very rare and aggressive brain or spinal cord cancer. It mainly affects children and young adults. “CNS” refers to the central nervous system, which includes the brain and spinal cord....
Our New Resource Page for Diffuse Leptomeningeal Glioneuronal Tumour (DLGNT)
Diffuse Leptomeningeal Glioneuronal Tumour (DLGNT) is a very rare type of central nervous system tumour. It mostly affects children but can also occur in adults. The tumour spreads along the leptomeninges, which are the thin layers of tissue that...
Our New Resource Page for Indolent T-Cell Lymphoproliferative Disorder of Gastrointestinal Tract
Indolent T-cell Lymphoproliferative Disorder of the Gastrointestinal (GI) Tract is a very rare and unusual medical condition. It is a type of blood-related disease in which a certain group of immune cells, called T-cells, begin to grow slowly and...
Our New Resource Page for Meibomian Carcinoma
Meibomian Carcinoma, also known as sebaceous carcinoma, is a rare but serious cancer that begins in the oil-producing glands of the eyelids. These glands, called meibomian glands, play an important role in keeping the eyes healthy. They make a thin...