What is Malignant Ectomesenchymoma?
It is a rare type of rapidly growing tumor in children that arises from the tissues of the nervous system (brain and spinal cord) or soft tissues of the body. It can also affect people aged 60 and over. The most common sites for ectomesenchymoma development are the head, neck, abdomen, perineum (the area of skin between the anus and vagina in women and the area of skin between the scrotum and anus in men), arms, legs, hands, and feet.
Disease Causes
There is no well-known cause, however, certain hereditary or genetic mutations are considered responsible for the development of malignant ectomesenchymoma.
Disease Epidemiology
This is rare cancer that usually affects children under 15 years of age. However, in 20% of cases, it developed in adults and is somewhat more prevalent in men than in women.
Signs and Symptoms
There are no specific signs and symptoms. Symptoms are usually produced from the tumor compression of underlying structures.
Diagnosis
The following diagnostic tests and procedures can be used to make a diagnosis. These are
- Diagnostic imaging techniques such as USG, CT-scan, MRI, and PET scan can be used to detect the site, size, and extent of the tumor.
- Tumor biopsy
Treatment
Surgical excision (surgical removal of the tumor along with the removal of some surrounding tissues) and Chemotherapy are the main treatment option.
What support can we give for Malignant Ectomesenchymoma?
Malignant Ectomesenchymoma is a rare cancer, meaning it is not as well known as other forms of cancer. Without a Ribbon is an Australian organisation that provides support for individuals who suffer from rare cancers. We provide a designated platform for Warriors to obtain information specific to their Rare Cancer. We also provide annual opportunities for our Warriors to meet and learn from each other. If you suffer from a rare cancer such as Malignant Ectomesenchymoma, we can help and support you through your journey thanks to the generous donations we receive. Click the link below to sign up and become a Warrior today!
You can help us with your donation:
Without a Ribbon is a charity that works hard to aid those who suffer from rare cancers. You can help our cause in a variety of ways: Donations — Without a Ribbon is grateful when we receive every donation. Giving to Without a Ribbon helps us to provide ongoing support, organise the annual gathering and subsidise the costs of our Warriors attending these conferences. Sponsorship — If you wish to sponsor our charity, please contact us using this form. Volunteering — We are always looking for volunteers to help with different aspects of running our charity. So, if you are looking for volunteer work, please feel free to contact us.
