What is Haemangioendothelioma of the Bone?
Epithelioid Haemangioendothelioma is a rare type of malignant tumour that arises from the blood vessels or small capillaries of many organs such as the lungs, liver, bone, and soft tissues of the body. Epitheliod haemangioendothelioma of the bone is very rare as in only 1% of cases it originates from the bonesWhat is Haemangioendothelioma?
The term haemangioendothelioma is used to describe the cancer of blood vessels and small capillaries. These may be benign (non-cancerous) or malignant (cancerous). Hemangioendothelioma can affect the skin and soft tissues of the body, such as the liver or lungs. It is a slowly growing tumour but tends to metastasize (spread of the tumour from its place of origin to other parts of the body).Disease Causes
Epithelial hemangioendothelioma of bone has a genetic origin because it is caused by translocation in the arrangement of chromosomes (swapping of genetic material) called WC fusion. It is equally common in both men and women. It can occur at any age, but the peak incidence of the disease occurs in the 2nd and 3rd decades of life.Signs and Symptoms
The patient may suffer from the following signs and symptoms. These are- Pain in the affected bone particularly with exertion or doing any physical activity
- Limp (Difficulty in walking or writing due to damage or fracture in bone of arm or leg)
- Swelling
- Broken bones
- Fever
- Night sweats
- Weight loss
Diagnosis
The following diagnostic tests and procedures can be used to make a diagnosis. These are- Complete blood count (CBC)
- Lactic dehydrogenase (LDH)
- Alkaline Phosphatase (ALP)
- Liver function tests (LFTs)
- Renal Function tests (RFTs)
- Imaging diagnostic techniques such as X-Ray, CT-scan, and PET-scan can be used to detect the site, size, and extent of the tumour.
- Tumour Biopsy
- Aspiration Cytology
Treatment
Surgical removal of the tumour or affected part is the main treatment option. Radiation therapy and chemotherapy are the main treatment options in the metastatic cases of the epitheliod haemangioendothelioma of bone.What Support can we Give for Epitheliod Haemangioendothelioma of Bone?
Epitheliod Haemangioendothelioma of Bone is rare cancer, meaning it is not as well known as other forms of cancer. Without a Ribbon is an Australian organisation that provides support for individuals who suffer from rare cancers. So, we provide a designated platform for Warriors to obtain information specific to their Rare Cancer. We also provide annual opportunities for our Warriors to meet and learn from each other. If you suffer from rare cancer such as Epitheliod Haemangioendothelioma of Bone, we can help and support you through your journey thanks to the generous donations we receive. Click the link below to sign up and become a Warrior today!You can help us with your donation:
Without a Ribbon is a charity that works hard to aid those who suffer from rare cancers. You can help our cause in a variety of ways:Donations — Without a Ribbon is grateful when we receive every donation. Giving to Without a Ribbon helps us to provide ongoing support, organise the annual gathering and subsidise the costs of our Warriors attending these conferences.
Sponsorship — If you wish to sponsor our charity, please contact us using this form.
Volunteering — We are always looking for volunteers to help with different aspects of running our charity. So, if you are looking for volunteer work, please feel free to contact us.
