BCOR-Internal Tandem Duplication Sarcoma is a very rare type of cancer that develops due to a change in a gene called BCOR. Genes normally control how cells grow and function, but in this condition, a part of the BCOR gene is abnormally repeated. This repetition is called “internal tandem duplication.” Because of this change the normal control of cell growth is lost and cells begin to grow in an uncontrolled way, forming a tumour.
This tumour is now considered a separate and distinct disease, different from other BCOR-related tumours. It mainly affects soft tissues such as muscles and connective tissue, but in some cases it can also develop inside the body in organs like the abdomen or chest.
Many sufferers of BCOR-Internal Tandem Duplication Sarcoma struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as BCOR-Internal Tandem Duplication Sarcoma. We have recently created an BCOR-Internal Tandem Duplication Sarcoma resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of BCOR-Internal Tandem Duplication Sarcoma, click here to learn how you can help!
Click the link below to read our resource page on BCOR-Internal Tandem Duplication Sarcoma: