SMARCB1-Deficient Sinonasal Carcinoma is a very rare and aggressive type of cancer that develops in the nasal cavity or the sinus areas around the nose. The term “SMARCB1-deficient” means that the tumour cells have lost a specific gene called SMARCB1, which normally helps control cell growth. When this gene is missing or not functioning properly, cells can grow uncontrollably and form a cancer.
This tumour is genetically different from other nasal cancers and is considered a distinct disease. It is not the same as the more common types of sinus cancers.
Many sufferers of SMARCB1-Deficient Sinonasal Carcinoma struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as SMARCB1-Deficient Sinonasal Carcinoma. We have recently created an SMARCB1-Deficient Sinonasal Carcinoma resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of SMARCB1-Deficient Sinonasal Carcinoma, click here to learn how you can help!
Click the link below to read our resource page on SMARCB1-Deficient Sinonasal Carcinoma: