SMARCA4-Deficient Thoracic Tumour is a very rare and highly aggressive cancer that develops in the chest area, most commonly in the lungs or the tissues of the mediastinum, which is the central space between the lungs.
The name of this disease comes from a specific genetic problem involving the SMARCA4 gene, which normally helps control how cells grow, repair damage, and function properly. When this gene stops working, cells lose normal control and begin to grow rapidly, forming a dangerous tumour.
Many sufferers of SMARCA4-Deficient Thoracic Tumour struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as SMARCA4-Deficient Thoracic Tumour. We have recently created an SMARCA4-Deficient Thoracic Tumour resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of SMARCA4-Deficient Thoracic Tumour, click here to learn how you can help!
Click the link below to read our resource page on SMARCA4-Deficient Thoracic Tumour: