Pseudomyogenic Hemangioendothelioma is a very rare type of tumour that comes from the cells lining the blood vessels. It mostly affects young adults, especially men, and often appears in the arms or legs. The word “pseudomyogenic” means that under the microscope, the tumour looks like muscle tissue, even though it is not made from muscles.
It is also called “epithelioid sarcoma-like hemangioendothelioma” because of how the cells appear. This tumour is known to grow slowly and rarely spreads to distant parts of the body, but it often reappears in the same area after treatment.
Many sufferers of Pseudomyogenic Hemangioendothelioma struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as Pseudomyogenic Hemangioendothelioma. We have recently created an Pseudomyogenic Hemangioendothelioma resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of Pseudomyogenic Hemangioendothelioma, click here to learn how you can help!
Click the link below to read our resource page on Pseudomyogenic Hemangioendothelioma: