Malignant PEComa is a very rare type of cancer that arises from special cells called perivascular epithelioid cells. These cells are unusual because they show features of both muscle cells and pigment-producing cells. PEComas belong to a group of tumours known as mesenchymal tumours, meaning they arise from connective tissues such as muscle and blood vessel walls.
Most PEComas are benign, but malignant PEComa is the aggressive form. It can develop in different parts of the body, including the uterus, abdomen, retroperitoneum, kidney, liver, and soft tissues.
Many sufferers of Malignant PEComa struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as Malignant PEComa. We have recently created an Malignant PEComa resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of Malignant PEComa , click here to learn how you can help!
Click the link below to read our resource page on Malignant PEComa: