DICER1-Associated Sarcoma is a very rare type of cancer that develops due to a problem in a gene called DICER1. This gene normally helps control how cells grow and develop. When it does not work properly, abnormal cells can grow and form tumours. This sarcoma can occur in different parts of the body such as the lungs, kidneys, brain or soft tissues. It is often linked to a genetic condition called DICER1 syndrome, where a person may develop different types of tumours during their lifetime. This tumour is usually aggressive, meaning it can grow quickly.
Many sufferers of DICER1-Associated Sarcoma struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as DICER1-Associated Sarcoma. We have recently created an DICER1-Associated Sarcoma resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of DICER1-Associated Sarcoma , click here to learn how you can help!
Click the link below to read our resource page on DICER1-Associated Sarcoma: