CIC-Rearranged Sarcoma is a very rare and aggressive type of soft tissue cancer. It develops because of a specific genetic change involving a gene called CIC. In this condition, the CIC gene becomes abnormally joined with another gene, creating what is called a “gene rearrangement.” This abnormal fusion causes cells to grow and divide uncontrollably, leading to tumour formation.
For many years, this tumour was thought to be a type of Ewing sarcoma because it looks similar under the microscope. However, modern genetic testing has shown that it is a completely separate and more aggressive disease. It is now recognised as a distinct category of sarcoma.
Many sufferers of CIC-Rearranged Sarcoma struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as CIC-Rearranged Sarcoma. We have recently created an CIC-Rearranged Sarcoma resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of CIC-Rearranged Sarcoma, click here to learn how you can help!
Click the link below to read our resource page on CIC-Rearranged Sarcoma: