CIC-DUX4 Sarcoma is a very rare and aggressive type of soft tissue cancer. It develops because of a specific genetic change inside the tumour cells. In this condition, two genes called CIC and DUX4 join together abnormally, which is known as a gene fusion. This fusion disturbs the normal control of cell growth and causes the cells to grow very fast and in an uncontrolled way.
In the past, doctors often confused this tumour with Ewing sarcoma because both can look similar under the microscope. However, modern testing has shown that CIC-DUX4 sarcoma is a different disease and usually behaves more aggressively. It most commonly develops in deep soft tissues such as muscles, but in some cases, it can also involve other areas of the body.
Many sufferers of CIC-DUX4 Sarcoma struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as CIC-DUX4 Sarcoma. We have recently created an CIC-DUX4 Sarcoma resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of CIC-DUX4 Sarcoma, click here to learn how you can help!
Click the link below to read our resource page on CIC-DUX4 Sarcoma: