CIC-DUX4 Sarcoma is a rare and aggressive cancer that usually develops in the soft tissues of the body, especially in the arms, legs, trunk, or deep muscles. It mainly affects children and young adults, although it can occur at any age. The tumour is caused by an abnormal fusion of the CIC and DUX4 genes, which leads to uncontrolled growth of cancer cells. It is different from Ewing Sarcoma because it has different genetic features and behaves more aggressively.
Many sufferers of CIC-DUX4 Sarcoma struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as CIC-DUX4 Sarcoma. We have recently created an CIC-DUX4 Sarcoma resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of CIC-DUX4 Sarcoma, click here to learn how you can help!
Click the link below to read our resource page on CIC-DUX4 Sarcoma: