BAP1 Tumour Predisposition Syndrome is a rare genetic condition that increases a person’s risk of developing certain types of cancer. This happens because of a mutation (change) in a specific gene called BAP1.
Normally, this gene helps control how cells grow and divide, preventing them from turning into cancer. But when this gene doesn’t work properly, cells can grow abnormally, making it easier for cancers to form in different parts of the body.
Many sufferers of BAP1 Tumour Predisposition Syndrome struggle because they feel that their disease doesn’t have the same level of awareness as more common cancers. Without a Ribbon is an Australian non-profit organisation that believes that rare cancers should never go unnoticed. We aim to provide a detailed set of resources and information for anyone suffering from cancers such as BAP1 Tumour Predisposition Syndrome. We have recently created an BAP1 Tumour Predisposition Syndrome resource page to help sufferers understand their disease. It covers the symptoms, available treatments and other important information.
We hope that this resource page will help you or a friend/family member to learn about their illness and aid them through their battle with the disease.
If you want to help make a difference for sufferers of BAP1 Tumour Predisposition Syndrome, click here to learn how you can help!
Click the link below to read our resource page on BAP1 Tumour Predisposition Syndrome: