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Anal Cancer Warriors Portal

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Posted by Matthew O’Connor | Jun 2, 2020

 

View helpful resources

Below is a link to some helpful resources relating to your cancer. We hope that the information provided can help you. View Resource Page

 

Other helpful links

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Contact us Learn More

 

Emotional Support


Website Groups

Bowel Cancer Australia – there a few sites that provide general information about anal cancer, but this one was the most informative

https://www.bowelcanceraustralia.org/what-is-anal-cancer

 

Australian Facebook Group

Anal Cancer Survivors Australia – has 88 members

https://www.facebook.com/groups/470734446365114/?ref=br_rs 

 

International Facebook Group

Anal Cancer It’s A Pain In The Butt Literally – 728 members. An active Facebook group with regular posts.

https://www.facebook.com/AnalCancerRibbonPage/ 

 

Extra Support Group

http://www.rare-cancer.org/forum/viewforum.php?f=121 This is a US forum dedicated to anal cancer with a bit under 10,000 posts. You have to register first to read and make your own posts on the forum, but would be a great source for those diagnosed with anal cancer.

 

 

Medical


AUS Medical Practitioners

https://www.bowelcanceraustralia.org/find-a-specialist This website provides a search engine to find a Gastroenterologist, Colorectal Surgeon and Medical Oncologist in your state. Each search is a link that takes you to another service to complete the search.

 

QLD

http://cancercare.mater.org.au/home/services/medical-oncology.aspx Mater Cancer Care Centre – The service is managed using a comprehensive framework of coordinated care, providing treatment plans for all types of solid tumours including: colorectal

 

NSW

https://svhs.org.au/wps/wcm/connect/svhs/home/our-services/list-of-services/medical-oncology-services/medical-oncology St Vincent’s Medical Oncology Department – they have Associate Professor Eva Segelov (PhD, FRACP) who specialises in Gastrointestinal cancer (including anal cancer). “The St Vincent’s Medical Oncology Department is a multi-disciplinary team of specialists who are experts in treating and supporting patients with cancer.”

 

ACT

http://www.health.act.gov.au/our-services/canberra-hospital-campus Canberra Hospital website. Largest hospital in the ACT.

 

VIC

https://www.petermac.org/cancer/lower-gastrointestinal

Peter MacCallum Cancer Centre – public hospital that specialises in cancer. “The Lower Gastrointestinal Service is composed of a team of experts from both Peter Mac and the Royal Melbourne Hospital.”

 

TAS

http://www.dhhs.tas.gov.au/hospital/royal-hobart-hospital/information_for_patients_and_visitors2

Royal Hobart Hospital homepage

 

SA

https://www.rah.sa.gov.au/cancer/cancer.php

Royal Adelaide Hospital – Cancer Centre. Large hopsital with a focused cancer unit

 

WA

http://www.scgh.health.wa.gov.au/Clinicians/Services/MedicalOncology.html

Sir Charles Gairdner Hospital – it houses the state’s only comprehensive cancer treatment centre.

 

NT

https://nt.gov.au/wellbeing/cancer-services/alan-walker-cancer-care-centre

Alan Walker Cancer Care Centre “The Alan Walker Cancer Care Centre is located at the Royal Darwin Hospital and has the following services for Northern Territory (NT) patients: radiation therapy, outpatient chemotherapy unit, specialist outpatients clinic, other specialist cancer services.

 

Treatment Opts

https://www.cancer.org/cancer/anal-cancer/treating/by-stage.html

Treatment of Anal Cancer by Stage

 

2nd Opts with Leaving Home

http://www.health.act.gov.au/our-services/cancer-services

 

Further Reading

http://www.sciencedirect.com/science/article/pii/S0167814014001765

Anal cancer: clinical practice guidelines for diagnosis, treatment and follow-up. This is a more technical article published in 2014, but might be of interest to individuals who are after a more in depth understanding of anal cancer and some of the treatment options

 

Latest Rare Cancer News


Rare Cancer AUS

https://www.rarecancers.org.au/news/category/119/rca-releases

Rare Cancer Australia

 

Rare Cancer International

http://www.rarecancerseurope.org/News

Rare Cancers Europe

 

Clinical Trials AUS & NZ

http://www.anzctr.org.au/TrialSearch.aspx?searchTxt=anal+cancer&conditionCategory=&conditionCode=&interventionCodeOperator=OR&interventionCode=&ageGroup=&healthyVolunteers=All&gender=All&allocationToIntervention=&dateOfRegistrationFrom=&dateOfRegistrationTo=&trialStartDateFrom=&trialStartDateTo=&recruitmentCountryOperator=OR&countryOfRecruitment=&primarySponsorType=&fundingSource=&healthCondition=&interventionDescription=&phase=&recruitmentStatus=Recruiting&registry=ALL&ethicsReview=&studyType=&isBasic=False&postcode=&distance=

Over 300 clinical trials – many of them have been completed, but there are still a significant number of studies that are currently recruiting

 

Clincial Trials AUS & O/S

https://clinicaltrials.gov/ct2/results?term=anal+cancer&Search=Search

Over 300 clinical trials – many of them have been completed, but there are still a significant number of studies that are currently recruiting

 

Other News

https://www.analcancerfoundation.org/news/

Large site focused on anal cancer with regular posts about range of issues for warriors (fundraising events, support groups, clinical research, etc.) Also links to a partner organisation (Noman) which is a very active fundraising group internationally for anal cancer

 

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