View helpful resources
Below is a link to some helpful resources relating to your cancer. We hope that the information provided can help you. View Resource Page
Other helpful links
Emotional Support
Website Groups
Bowel Cancer Australia – there a few sites that provide general information about anal cancer, but this one was the most informative
https://www.bowelcanceraustralia.org/what-is-anal-cancer
Australian Facebook Group
Anal Cancer Survivors Australia – has 88 members
https://www.facebook.com/groups/470734446365114/?ref=br_rs
International Facebook Group
Anal Cancer It’s A Pain In The Butt Literally – 728 members. An active Facebook group with regular posts.
https://www.facebook.com/AnalCancerRibbonPage/
Extra Support Group
http://www.rare-cancer.org/forum/viewforum.php?f=121 This is a US forum dedicated to anal cancer with a bit under 10,000 posts. You have to register first to read and make your own posts on the forum, but would be a great source for those diagnosed with anal cancer.
Medical
AUS Medical Practitioners
https://www.bowelcanceraustralia.org/find-a-specialist This website provides a search engine to find a Gastroenterologist, Colorectal Surgeon and Medical Oncologist in your state. Each search is a link that takes you to another service to complete the search.
QLD
http://cancercare.mater.org.au/home/services/medical-oncology.aspx Mater Cancer Care Centre – The service is managed using a comprehensive framework of coordinated care, providing treatment plans for all types of solid tumours including: colorectal
NSW
https://svhs.org.au/wps/wcm/connect/svhs/home/our-services/list-of-services/medical-oncology-services/medical-oncology St Vincent’s Medical Oncology Department – they have Associate Professor Eva Segelov (PhD, FRACP) who specialises in Gastrointestinal cancer (including anal cancer). “The St Vincent’s Medical Oncology Department is a multi-disciplinary team of specialists who are experts in treating and supporting patients with cancer.”
ACT
http://www.health.act.gov.au/our-services/canberra-hospital-campus Canberra Hospital website. Largest hospital in the ACT.
VIC
https://www.petermac.org/cancer/lower-gastrointestinal
Peter MacCallum Cancer Centre – public hospital that specialises in cancer. “The Lower Gastrointestinal Service is composed of a team of experts from both Peter Mac and the Royal Melbourne Hospital.”
TAS
http://www.dhhs.tas.gov.au/hospital/royal-hobart-hospital/information_for_patients_and_visitors2
Royal Hobart Hospital homepage
SA
https://www.rah.sa.gov.au/cancer/cancer.php
Royal Adelaide Hospital – Cancer Centre. Large hopsital with a focused cancer unit
WA
http://www.scgh.health.wa.gov.au/Clinicians/Services/MedicalOncology.html
Sir Charles Gairdner Hospital – it houses the state’s only comprehensive cancer treatment centre.
NT
https://nt.gov.au/wellbeing/cancer-services/alan-walker-cancer-care-centre
Alan Walker Cancer Care Centre “The Alan Walker Cancer Care Centre is located at the Royal Darwin Hospital and has the following services for Northern Territory (NT) patients: radiation therapy, outpatient chemotherapy unit, specialist outpatients clinic, other specialist cancer services.
Treatment Opts
https://www.cancer.org/cancer/anal-cancer/treating/by-stage.html
Treatment of Anal Cancer by Stage
2nd Opts with Leaving Home
http://www.health.act.gov.au/our-services/cancer-services
Further Reading
http://www.sciencedirect.com/science/article/pii/S0167814014001765
Anal cancer: clinical practice guidelines for diagnosis, treatment and follow-up. This is a more technical article published in 2014, but might be of interest to individuals who are after a more in depth understanding of anal cancer and some of the treatment options
Latest Rare Cancer News
Rare Cancer AUS
https://www.rarecancers.org.au/news/category/119/rca-releases
Rare Cancer Australia
Rare Cancer International
http://www.rarecancerseurope.org/News
Rare Cancers Europe
Clinical Trials AUS & NZ
Over 300 clinical trials – many of them have been completed, but there are still a significant number of studies that are currently recruiting
Clincial Trials AUS & O/S
https://clinicaltrials.gov/ct2/results?term=anal+cancer&Search=Search
Over 300 clinical trials – many of them have been completed, but there are still a significant number of studies that are currently recruiting
Other News
https://www.analcancerfoundation.org/news/
Large site focused on anal cancer with regular posts about range of issues for warriors (fundraising events, support groups, clinical research, etc.) Also links to a partner organisation (Noman) which is a very active fundraising group internationally for anal cancer