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Adenoid Cystic Carcinoma of the Vulva – Symptoms, Treatment & Support

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Posted by Matthew O’Connor | Apr 24, 2023

What is Adenoid Cystic Carcinoma of the Vulva?

Adenoid cystic carcinoma of the vulva is an extremely rare type of vulvar cancer, characterised by slow growth and a high tendency for recurrence. This type of cancer generally affects the salivary glands but can occasionally be found in the vulva.

Symptoms

Symptoms of adenoid cystic carcinoma of the vulva may include:
  • A lump, sore, or swelling on the vulva
  • Persistent itching in the vulvar area
  • Pain or discomfort in the vulvar region
  • Bleeding or discharge not related to menstruation
  • Changes in the colour or skin of the vulva

Disease Aetiology (Causes)

The precise cause of adenoid cystic carcinoma of the vulva is unknown. However, risk factors for vulvar cancer in general can include human papillomavirus (HPV) infection, smoking, and certain skin conditions affecting the vulva.

Diagnosis

Diagnosis of adenoid cystic carcinoma of the vulva typically involves:
  • Detailed medical history and physical examination
  • Biopsy of the suspicious area
  • Imaging tests like ultrasound, CT scan, or MRI to determine the extent of the cancer
  • Additional tests such as chest X-rays to check for spread to other organs

Treatment

The treatment for adenoid cystic carcinoma of the vulva often includes:
  • Surgery: This is usually the first-line treatment and involves the removal of the tumour and some surrounding tissue.
  • Radiation therapy: This may be used after surgery to kill any remaining cancer cells or as a primary treatment if surgery is not an option.
  • Chemotherapy: Given the aggressive nature of adenoid cystic carcinoma, chemotherapy may be used, especially if the cancer has spread to other parts of the body.

What Support can we Give for Adenoid Cystic Carcinoma of the Vulva?

Adenoid Cystic Carcinoma of the Vulva is rare cancer, meaning it is not as well known as other forms of cancer. Without a Ribbon is an Australian organisation that provides support for individuals who suffer from rare cancers. So, we provide a designated platform for Warriors to obtain information specific to their Rare Cancer. We also provide annual opportunities for our Warriors to meet and learn from each other. If you suffer from rare cancer such as Adenoid Cystic Carcinoma of the Vulva, we can help and support you through your journey thanks to the generous donations we receive. Click the link below to sign up and become a Warrior today!

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Without a Ribbon is a charity that works hard to aid those who suffer from rare cancers. You can help our cause in a variety of ways:
Donations — Without a Ribbon are grateful when we receive every donation. Giving to Without a Ribbon helps us to provide ongoing support, organise the annual gathering and subsidise the costs of our Warriors attending these conferences.
Sponsorship — If you wish to sponsor our charity, please contact us using this form.
Volunteering — We are always looking for volunteers to help with different aspects of running our charity. So, if you are looking for volunteer work, please feel free to contact us.

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