What is Spindle Cell Hemangioendothelioma?
Spindle cell hemangioma is a rare tumour that usually develops in the deeper layers of the skin of the arms and legs and is usually always less than 2 cm in diameter. In rare cases, it can develop in the head and neck area. Spindle cell hemangioendotheliomaDisease Etiology (Causes)
There is no well-known cause; however certain genetic mutations (faulty changes in genes) are believed to be responsible for the development of the disease.Disease Epidemiology
This is a rare disease that is equally common in both men and women. In most cases, it affects children and adults, but it can develop at any age.Signs and Symptoms
The patient may suffer from the following signs and symptoms. These are- Single or multiple slowly growing swellings or tumours on the arms, legs, chest, or head and neck region
- These lesions or tumours can be hard or soft
Diagnosis
The following diagnostic tests and procedures can be used to make a diagnosis. These are- Complete blood count (CBC)
- Blood coagulation profile
- BUN ( blood urea and nitrogen)
- Serum creatinine
- Liver function tests LFT’s
- Amylase and lipase values
- Imaging techniques like CT scan, MRI, PET scan, X-Ray, and USG to detect the site and size of the tumour.
- Serum bilirubin total, serum bilirubin conjugated and unconjugated
- Preoperative biopsy
Treatment
Surgical excision of the tumour with full-screen grafting is the main treatment option.What Support can we Give for Spindle Cell Hemangioendothelioma?
Spindle Cell Hemangioendothelioma is rare cancer, meaning it is not as well known as other forms of cancer. Without a Ribbon is an Australian organisation that provides support for individuals who suffer from rare cancers. So, we provide a designated platform for Warriors to obtain information specific to their Rare Cancer. We also provide annual opportunities for our Warriors to meet and learn from each other. If you suffer from rare cancer such as Spindle Cell Hemangioendothelioma, we can help and support you through your journey thanks to the generous donations we receive. Click the link below to sign up and become a Warrior today!You can help us with your donation:
Without a Ribbon is a charity that works hard to aid those who suffer from rare cancers. You can help our cause in a variety of ways:Donations — Without a Ribbon is grateful when we receive every donation. Giving to Without a Ribbon helps us to provide ongoing support, organise the annual gathering and subsidise the costs of our Warriors attending these conferences.
Sponsorship — If you wish to sponsor our charity, please contact us using this form.
Volunteering — We are always looking for volunteers to help with different aspects of running our charity. So, if you are looking for volunteer work, please feel free to contact us.
