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Sclerosing Epithelioid Fibrosarcoma – Symptoms, Treatment & Support

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Posted by tatiana | Feb 14, 2022

What is Sclerosing Epitheliod Fibrosarcoma?

Sclerosing epithelioid Fibrosarcoma is a rare type of cancer that originates from the bone, cartilages, and other connective tissues such as blood vessels, fat tissues, and smooth tissues of the body. It is more common in women than in men, with the average age of onset being 45 years. A Sclerosing epithelioid fibrosarcoma tumour mostly arises from the deep soft tissues of the legs, chest, abdomen, head, and neck.

Disease Causes

There is no well-known cause; however, certain hereditary and genetic mutations (abnormal changes in genes) are believed to be responsible for the development of sclerosing epithelial fibrosarcoma.

Signs and Symptoms

The patient may suffer from the following signs and symptoms. These are

  • A gradually growing mass or lump under the skin
  • Pain at the site of the tumour

Diagnosis

Definite diagnostic tests to diagnose the sclerosing epithelioid fibrosarcoma are tumour biopsy and histopathology, Fine needle aspiration cytology, and cytogenetic study of the specimen. Radiological techniques like CT scan, MRI, USG, and X-ray also recommended locating the size and site of the tumour.

Treatment

For the tumour which is not widespread, wide local surgical excision of the tumour is the most effective treatment option. Chemotherapy and radiotherapy are the treatment options for tumours that spread to distant parts of the body and are not confined to their site of origin.  


 

What Support can we Give for Sclerosing Epithelioid Fibrosarcoma?

Sclerosing Epithelioid Fibrosarcoma is rare cancer, meaning it is not as well known as other forms of cancer. Without a Ribbon is an Australian organisation that provides support for individuals who suffer from rare cancers. So, we provide a designated platform for Warriors to obtain information specific to their Rare Cancer. We also provide annual opportunities for our Warriors to meet and learn from each other. If you suffer from rare cancer such as Sclerosing Epithelioid Fibrosarcoma, we can help and support you through your journey thanks to the generous donations we receive. Click the link below to sign up and become a Warrior today!

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Without a Ribbon is a charity that works hard to aid those who suffer from rare cancers. You can help our cause in a variety of ways:

Donations — Without a Ribbon is grateful when we receive every donation. Giving to Without a Ribbon helps us to provide ongoing support, organise the annual gathering and subsidise the costs of our Warriors attending these conferences.
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