What is Mediastinal Rhabdomyosarcoma?
Mediastinal rhabdomyosarcoma is a rare soft tissue tumour of the mediastinum in children and young adults. It is rare in adults and accounts for less than 1% of all adult solid tissue cancers. The average age of onset is 23 years. Mediastinal rhabdomyosarcomas are larger and tend to invade underlying and nearby tissues.What is Mediastinum?
The mediastinum is a space in the thorax that contains the heart, thymus gland, portions of the esophagus trachea, and other structures.Disease Causes
There is no well-known cause, but certain hereditary and genetic conditions may be responsible for the development of mediastinal rhabdomyosarcoma.Signs and Symptoms
The patient may suffer from the following signs and symptoms. These are- Pain in the chest
- Persistent cough
- Difficulty in breathing
- Pleural effusion (buildup of excessive fluids in layers of pleura, pleura is a membrane that cover the lungs from outside)
Diagnosis
The following diagnostic tests and procedures can be used to make a diagnosis. These are- CBC (complete blood count)
- Blood sugar levels
- Measurement of plasma-free metanephrines
- CT-scan, MRI, OR PET Scan of abdomen and chest
Treatment
Complete surgical resection (surgical removal of the part or whole of the tumour or affected organ) of the tumour is the main treatment option. Other treatment options are chemotherapy and radiation therapy.What Support can we Give for Mediastinal Rhabdomyosarcoma?
Mediastinal Rhabdomyosarcoma is rare cancer, meaning it is not as well known as other forms of cancer. Without a Ribbon is an Australian organisation that provides support for individuals who suffer from rare cancers. So, we provide a designated platform for Warriors to obtain information specific to their Rare Cancer. We also provide annual opportunities for our Warriors to meet and learn from each other. If you suffer from rare cancer such as Mediastinal Rhabdomyosarcoma, we can help and support you through your journey thanks to the generous donations we receive. Click the link below to sign up and become a Warrior today!You can help us with your donation:
Without a Ribbon is a charity that works hard to aid those who suffer from rare cancers. You can help our cause in a variety of ways:Donations — Without a Ribbon is grateful when we receive every donation. Giving to Without a Ribbon helps us to provide ongoing support, organise the annual gathering and subsidise the costs of our Warriors attending these conferences.
Sponsorship — If you wish to sponsor our charity, please contact us using this form.
Volunteering — We are always looking for volunteers to help with different aspects of running our charity. So, if you are looking for volunteer work, please feel free to contact us.
