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Haemangioblastoma of Brain – Symptoms, Treatment & Support

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Posted by Matthew O’Connor | Sep 25, 2023

What is the Haemangioblastoma Brain?

Haemangioblastoma of brain is a rare, benign vascular tumour of the central nervous system. Originating from the blood vessels in the brain, it typically doesn’t spread to other parts of the body. Despite its benign nature, its location can lead to significant symptoms and complications.

Symptoms

Symptoms associated with Haemangioblastoma of brain vary based on the tumour’s size and location. They can include:
  • Headaches
  • Issues with balance and coordination
  • Vision problems
  • Vomiting or nausea
  • Vertigo or dizziness

Disease Aetiology (Causes)

The exact cause of Haemangioblastoma of Brain is not known. It is sometimes associated with a genetic condition known as Von Hippel-Lindau (VHL) disease, which predisposes individuals to various benign and malignant tumours.

Diagnosis

Haemangioblastoma of Brain diagnosis involves several methods:
  • Neurological Examination: Evaluating the patient’s symptoms, history, and conducting neurological assessments.
  • Imaging Studies: MRI or CT scans give detailed images of the brain, assisting in locating and characterising the tumour.
  • Angiography: This imaging test helps visualize blood flow in the brain, which can be crucial for surgical planning.

Treatment

The approach to treating Haemangioblastoma (Brain) includes:
  • Surgery: The most common treatment, where the goal is to completely remove the tumour.
  • Stereotactic Radiosurgery: This non-invasive treatment uses targeted radiation to eliminate the tumour and is especially beneficial when surgical removal is high risk or impossible.
  • Monitoring: For smaller, asymptomatic tumours, regular observation and imaging may be the best approach.

What support can we give for haemangioblastoma of brain?

Haemangioblastoma of brain is a rare cancer, meaning it is not as well-known as other forms of cancer. Without a Ribbon is an Australian organisation that provides support for individuals who suffer from rare cancers. So, we provide a designated platform for Warriors to obtain information specific to their Rare Cancer. We also provide annual opportunities for our Warriors to meet and learn from each other. If you suffer from rare cancer such as Haemangioblastoma of brain, we can help and support you through your journey thanks to the generous donations we receive. Click the link below to sign up and become a Warrior today!

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You can help us with your donation:

Without a Ribbon is a charity that works hard to aid those who suffer from rare cancers. You can help our cause in a variety of ways:
Donations — Without a Ribbon are grateful when we receive every donation. Giving to Without a Ribbon helps us to provide ongoing support, organise the annual gathering and subsidise the costs of our Warriors attending these conferences.
Sponsorship — If you wish to sponsor our charity, please contact us using this form.
Volunteering — We are always looking for volunteers to help with different aspects of running our charity. So, if you are looking for volunteer work, please feel free to contact us.

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